DepositThe Diving Bell and the Butterfly: Locked-In Syndrome and the (Un)Ethics of Narrative as Personhood

This is a slightly revised version of the paper I gave for the Out of Narrative Bounds panel organized by the forums TC Medical Humanities and Health Studies and TC Age Studies. This panel was chosen as representative of the presidential theme, Boundary Conditions. In this paper I use Jean-Dominque Bauby’s memoir, The Diving-Bell and the Butterfly, to examine ethical issues pertaining to auto/biography studies’ and medical humanities studies’ centralization of the capacity to produce embodied narrative to understandings of identity and personhood.

MemberMonika Pietrzak-Franger

…Medical Humanities
While I am involved in a number of projects in this area, I’d like to draw attention to:
An Interdisciplinary Lecture Series, I have organised: Medical Humanities: Cultures, Sciences, Media: CSM
There is some more information about our aims, especially in times of Covid-19 and Coronavirus: The Power of Images
Die Bildsprache des Coronavirus
Nineteenth-Century Transmedia Practices
Next to our interdisciplinary symposium: Nineteenth-Century Transmedia-Practices
we are at the moment preparing a publication on the topic.
Having served as Book Review Editor for Adaptation for a number of years, I have been elected Trustee of the Association of Adaptation Studies. Despite …

I am Professor of British Culture and Literature at the University of Vienna, Austria. My areas of research include Medical Humanities, Adaptation, Inter- and Transmedia Studies, Victorian and Neo-Victorian Studies, Biopics, Digital Fictions the Digital Literary Sphere.

MemberSabina Knight

philosophy and literature in comparative perspective; early Chinese thought and contemporary Chinese fiction; medical humanities; modern and traditional Chinese literature, literature and medicine, comparative literature (Chinese, French, Russian, Japanese, and North American), literary theory, theories of narrative; East Asian humanities; poetry; ecocriticism; nineteenth-, twentieth- and twenty-first-century Russian literature.

TopicUsing Humanities Content and Approach to Shape Conversations about Healthcare

Howdy, I’m new to the group and thought I’d introduce myself by sharing an article about some of the medical humanities work I’m doing:  “Finding Purpose: Honing the Practice of Making Meaning in Medicine,” is about using poetry to facilitate discussions among physicians, among “interprofessional health care teams,” and between healthcare practitioners and patients. It’s […]

MemberTiffany DeRewal

Ph.D. Candidate in English at Temple University (18th-19th c. American Literature and Medical Humanities) and Writing Instructor at Rowan University I am pursuing a PhD in English literature at Temple University. My dissertation, “The Resurrection and the Knife: Protestantism, Nationalism, and the Invention of the Cadaver During the Rise of American Medicine” focuses on the intersection between gothic fiction, medical historiography, and religious ideology in the early American republic, with particular attention to the cadaver as it is created in cultural, medical, and spiritual discourse. This research unites my interests in the social history of medicine and the dynamics of the religious imagination in the 18th and 19th century United States. Research Interests: 19th c. American literature, literature and history in the early American republic, the medical humanities, gothic literature, spirituality and science Teaching Interests: writing across disciplines, writing with technology, digital research methods and pedagogy